Sorry that I missed posting anything yesterday. For the most part it was a very uneventful day. Tina's brother and sister-in-law came by the hospital in the morning for a few hours and headed out shortly after noon. Then Tina decided to pull another all-nighter to see if a last ditch sleep deprivation might get some seizures going. I have to admit that last night's sleep deprivation has been the hardest for me of any of the others, but Tina pushed through and is still going strong at 3:30pm (Monday).
This morning we were hit with some tough news that we're still trying to figure out how to deal with. The epileptologist came in this morning and expressed that he's becoming increasingly concerned with how long Tina's electrodes have been in her brain. His concern isn't because of any symptoms Tina is showing or anything like that, but just because of the length of time that she has had foreign objects in/on her brain. So it is his recommendation that they schedule her for surgery on Wednesday (11th) to take the electrodes out, but we won't know for sure until he can consult with the neurosurgeon tomorrow.
The obvious question we had for the epileptologist was what the nature of the surgery would be. He said that unless Tina has some seizures before now and Wednesday, they will simply remove all the electrodes, put her skull back in place, and send her home. As you can imagine this is difficult news. Essentially, unless Tina has a seizure within the next 48 hours, she will go home in the same state that she came to Cleveland in a month ago.
Although we are still praying for a seizure(s) before Wednesday, we had hoped that perhaps they had gotten enough information from all the seizures she had back with the first electrode and could proceed with some kind of resection (cutting out part of her brain) based on that. Apparently, without additional seizures, the risk is just too high to proceed. We are fighting disappointed but Tina continues to amaze me with her ability to holding onto the truth that God is good and is in control in the midst of her disappointment.
We have not given up hope. It is certainly within God's ability to allow for Tina to have seizures that would lead to a resective surgery, and we are praying for that, but I feel a sense of desperation knowing that we're down to the wire.
As I stood in the shower this morning, trying to let the fatigue and disappointment wash down the drain with the water, several thoughts came to mind. I have always struggled with certain passages of scripture that talk about having faith that moves mountains (Matt. 17:20; 21:21), and stories about people who simply have enough faith that God is going to do something and so it happens. I remember a scene from one of those movies that that one church down south made (I think it might have been Facing the Giants), where one of the "spiritual" characters says something like, "who has the greater faith; the farmer who prays for rain and waits, or the farmer who prays for rain and then goes out prepares his field."
I have to admit that I struggle with concepts like this. To me it almost feels as though God moving in my circumstances is contingent upon the amount of my faith that he will. In other words, if God answer my prayers it's because I had enough faith. If only I could somehow believed - really believed - enough, then the "mountain would move." The flip side of that thinking is that if my "mountain" (seizures) doesn't move it's because my faith has failed - I didn't believe enough. This is a concept that I have never been able to get my head around. I just can't make it fit with my theology.
I can't spend the next 48 hours trying to work my mind and heart into a place where if I just believe enough and have enough faith, that God will give Tina a seizure - like somehow my faith that God will do something obligates him to do it. So as I stood there in the shower, trying to wrap my head around all of this, the thought came to mind that perhaps it isn't about how much faith and belief I have in God doing something that I really think he should, but rather it's about how much faith and belief I have in God. Period.
If I believe with every fiber of my being that God is going to give Tina a seizure in the next 48 hours, does that mean that she will have one? I don't think so. It occurred to me that if God gives Tina a seizure based on my faith that he will do it, then the focus become primarily on the circumstances, the event, the seizure, not on where it should be - God. Perhaps faith that moves mountains is faith that is focused not on the mountain but on the one who actually has the power to move it regardless of whether or not he chooses to. If that is the case, then my faith will not falter even if the mountain doesn't move.
There are two farmers who pray for rain. One waits for the rain and the other goes out and prepares his field. Which one has more faith? Clearly the one who prepared his field, right? But what happens when the entire planting season goes by and no rain comes at all and the second farmer goes bankrupt because he invested his money into a field that never produced a crop? Then what? Is his faith shaken? If his faith is based on God giving rain (circumstances) then it will, but if his faith is based on God, period, then even if rain does not come his faith will remain.
The apostle Paul said in Corinthians 13 that "if I have a faith that can move mountains, but have not love, I am nothing." What I take this to mean, relative to my circumstances, is that what is of priority is not whether or not I have enough faith to move the mountain, or bring the rain, or produce seizures, but whether or not my love for God, or my belief in God's love for me, changes if the mountain doesn't move, if the rain doesn't come, or we go home from the hospital no further ahead then when we started this whole thing.
Please, please pray. Pray that Tina will have a seizure. Pray that the surgeon will be able to do a resection. Pray that Tina and I will remain confident in God's love and our (and your) faith would not waiver even if the mountain doesn't move.
Early Easter morning, four and a half years ago, life for our family changed forever. I awoke to the sound of an otherworldly noise and Tina’s body convulsing uncontrollably. That event began us onto a path where we would discover that Tina was suffering from late onset Epilepsy. That path would include long periods of Tina being home-bound and a non-stop roller-coaster of trying to figure out which medications would strike the best balance between controlling her seizures but also limit the debilitating side-effects of chronic fatigue and loss of focus – that effort has only been marginally successful.
On July 14th 2010, our path took another turn when Tina underwent a five week long surgical procedure where doctors at University Hospitals in Cleveland Ohio implanted multiple electrodes into her brain in the hope that this would allow them to locate the spot in her brain that is responsible for her seizures and then surgically remove that spot in an attempt to control her seizures without medication. Unfortunately after 3 surgical attempts to locating this seizure focus, the clock ran out and the risk of continuing this procedure became too great, so they removed all of the electrodes, and sent her home with very little to show for our 5 weeks in the hospital.
When we left Cleveland two summers ago we couldn't imagine that we would go back anytime soon. Those five weeks in the hospital were very disappointing for Tina and difficult for our kids. However, over the course of the last year and a half, Tina's seizures have become progressively more frequent, and medications have become progressively less effective at controlling her seizures. So, after consulting with Tina's neurologists, it is clear that we are in for yet another turn in the path of life.
We will once again be making the trip to University Hospitals in Cleveland, and on Wednesday January 11th, Tina will once again undergo the same procedure to implant electrodes in her brain to monitor seizure activity in the hope that they can determine the physical location of her seizures and surgically remove it.
This is not a path that we went looking for nor did we anticipate how sharply our lives would change literally over night when four and a half years ago these seizures began. There have been days when we have wondered as to why these things were happening and what God was up to in this. What we have learned is best summed up by the Apostle Paul in his letter to the church at Rome where he said that the paths that God lays out for us are "beyond tracing out." We may not understand this path or where it’s leading us, but what we do know is that we would rather follow God’s untraceable path than to follow any path we could lay out for ourselves. This blog is our attempt to bring others along with us as we walk along God’s untraceable path.
On July 14th 2010, our path took another turn when Tina underwent a five week long surgical procedure where doctors at University Hospitals in Cleveland Ohio implanted multiple electrodes into her brain in the hope that this would allow them to locate the spot in her brain that is responsible for her seizures and then surgically remove that spot in an attempt to control her seizures without medication. Unfortunately after 3 surgical attempts to locating this seizure focus, the clock ran out and the risk of continuing this procedure became too great, so they removed all of the electrodes, and sent her home with very little to show for our 5 weeks in the hospital.
When we left Cleveland two summers ago we couldn't imagine that we would go back anytime soon. Those five weeks in the hospital were very disappointing for Tina and difficult for our kids. However, over the course of the last year and a half, Tina's seizures have become progressively more frequent, and medications have become progressively less effective at controlling her seizures. So, after consulting with Tina's neurologists, it is clear that we are in for yet another turn in the path of life.
We will once again be making the trip to University Hospitals in Cleveland, and on Wednesday January 11th, Tina will once again undergo the same procedure to implant electrodes in her brain to monitor seizure activity in the hope that they can determine the physical location of her seizures and surgically remove it.
This is not a path that we went looking for nor did we anticipate how sharply our lives would change literally over night when four and a half years ago these seizures began. There have been days when we have wondered as to why these things were happening and what God was up to in this. What we have learned is best summed up by the Apostle Paul in his letter to the church at Rome where he said that the paths that God lays out for us are "beyond tracing out." We may not understand this path or where it’s leading us, but what we do know is that we would rather follow God’s untraceable path than to follow any path we could lay out for ourselves. This blog is our attempt to bring others along with us as we walk along God’s untraceable path.
16 comments:
GREAT post, Matt; we've struggled with this same idea, as I'm sure many have who have faced health issues or anything else! We are definitely praying for you! Lincoln was in Masen's group at Spring Hill, so I think it's helped her understand who you guys are more when we pray for you now. Hope you get great news soon!
We love you and we will not give up in our faith no matter the outcome. God is good all the time. All the time, God is good. Someday we will look back and see why He has allowed these weeks. Many prayers all day long!
I appreciated your heart and openness in the post. God is working some depth into your lives in a way that I don't believe any of us can understand or certainly appreciate.
Take the high ground my friend.
Robert Theaker
I do not know you but I am a friend of Christa's....I was reading your blog today. Being outside the whole situation looking at only one post from you (at this point) I wonder if you are correct in the fact of having faith solely in God Himself??? The thought that you have is to pray hard for a seizure for your wife but maybe this is all a test of you and your family's sole faith in God. Even if she does not have a seizure (and I cannot imagine your situation or your personal feelings) but as a bystander and by my faith in the Lord, I truly believe there is a plan set in motion. God has a plan for you and your family. Trust in that...have faith the God holds your wife's life in His very hands and that it is not aimed to hurt you but to make your faith stronger in Him. I will pray that God's Will is done in you and your family's lives. My thoughts and prayers are with you. (((HUGS)))
~Mandi Doran
God loves you guys... whatever happens in the next 48 hours - He holds you in His hands and loves you both. We will keep praying for the seizures to happen now - on the doctor's timeline - and have faith that God is right there whatever happens.
we love you and are continuing to pray for you and the family. We pray that God's will be done and that it may include some seizures!
Thank you so much for keeping us updated on the progression of these procedures.
We are continueing to pray that you will have the peace that whatever God has in store for you will be His "perfect plan". You two have an amazing testimony. We love you.
Oh how we love you and wish we were with you right now! But then, we sit here with tears as we read your blog of today. We are praying, praying, praying. mom and dad L.
thank you for this...it spoke us tonight. we are praying for you.
Tom and Teresa
HE just does NOT fit in our box, does He!! His ways are not our ways. Maybe Tina just needed a little shock therapy-- after all, she hasn't had a seizure since her last electrocution, has she? Could it be that Yahweh ("I will be what I will be") chose to heal her without surgery? Was this a vacation in the desert for the purpose of healing & drawing you close to Himself? Will HE chose to give the docs the info they need in the last hour? Will HE show them something they didn't see before?? All ponderings from my tiny brain. ;)
I'm frustrated for you guys. I don't want Tina to have gone thru all of this for nothing. That seems wholly unfair. Nevertheless, I am unwaveringly convinced that Jehovah LOVES you both more than all of us combined. So I'm keeping you in my prayers-- at HIS Feet.
Much love & hugs!
Jodie
PS Do you have the FULL version of Blokus?? It has 4 colors instead of 2... very fun & challenging!
Oh Tina and Matt...we are so sorry for the disappointment that you are surely feeling. Like Jodie said it seems so unfair that Tina would have gone through all of this without the end result that you were hoping for. We are holding you guys up before the Lord and while we are still praying for the seizures that the Drs. need, we are also praying for both of you that your faith will not waiver and for acceptance of whatever the Lord's answer to our prayers for you is. We love you!
G-Dude and Kathy
Tina and Matt, we are cousins of Christa's who live in Georgia. And you are in our prayers. His paths are truly untraceable.
Matt and Tina,
We are still praying and trusting the Lord for the best outcome for Tina and your family. God is good all the time.. . . focus on Him and he will give you comfort and show His overwhelming love to you both.
Ron and Shelia V.
It is never wrong to focus all your trust in God and God alone.
Habakkuk 3:17-18:Though the fig tree does not bud and there are no grapes on the vines, though the olive crop fails and the fields produce no food, though there are no sheep in the pen and no cattle in the stalls, yet I will rejoice in the Lord, I will be joyful in God my Savior.
Chad and I are praying that the seizures come and that though they might not, you will continue to rejoice in God your Savior.
~Jill
And the LORD, he [it is] that doth go before thee; he will be with thee, he will not fail thee, neither forsake thee: fear not, neither be dismayed. Deut.31:8
Matt and Tina, you are in our prayers. We cannot imagine going through all of this with the possibility of nothing coming out of it. Would love to come and while away some sleepless hours with you, but alas, Naivasha is just a bit too far away.
A deep article today. Thanks for sharing. Really got me thinking. I thought the Habakkuk 3:17-18 verse someone quoted followed on well from your thoughts in a most thought-provoking way.
We're praying for you two, and the kids!
Bernie and Celia
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