Early Easter morning, four and a half years ago, life for our family changed forever. I awoke to the sound of an otherworldly noise and Tina’s body convulsing uncontrollably. That event began us onto a path where we would discover that Tina was suffering from late onset Epilepsy. That path would include long periods of Tina being home-bound and a non-stop roller-coaster of trying to figure out which medications would strike the best balance between controlling her seizures but also limit the debilitating side-effects of chronic fatigue and loss of focus – that effort has only been marginally successful.

On July 14th 2010, our path took another turn when Tina underwent a five week long surgical procedure where doctors at University Hospitals in Cleveland Ohio implanted multiple electrodes into her brain in the hope that this would allow them to locate the spot in her brain that is responsible for her seizures and then surgically remove that spot in an attempt to control her seizures without medication. Unfortunately after 3 surgical attempts to locating this seizure focus, the clock ran out and the risk of continuing this procedure became too great, so they removed all of the electrodes, and sent her home with very little to show for our 5 weeks in the hospital.

When we left Cleveland two summers ago we couldn't imagine that we would go back anytime soon. Those five weeks in the hospital were very disappointing for Tina and difficult for our kids. However, over the course of the last year and a half, Tina's seizures have become progressively more frequent, and medications have become progressively less effective at controlling her seizures. So, after consulting with Tina's neurologists, it is clear that we are in for yet another turn in the path of life.

We will once again be making the trip to University Hospitals in Cleveland, and on Wednesday January 11th, Tina will once again undergo the same procedure to implant electrodes in her brain to monitor seizure activity in the hope that they can determine the physical location of her seizures and surgically remove it.

This is not a path that we went looking for nor did we anticipate how sharply our lives would change literally over night when four and a half years ago these seizures began. There have been days when we have wondered as to why these things were happening and what God was up to in this. What we have learned is best summed up by the Apostle Paul in his letter to the church at Rome where he said that the paths that God lays out for us are "beyond tracing out." We may not understand this path or where it’s leading us, but what we do know is that we would rather follow God’s untraceable path than to follow any path we could lay out for ourselves. This blog is our attempt to bring others along with us as we walk along God’s untraceable path.

Sunday, January 8, 2012

Here We Go Again

In a lot of ways it seams like just yesterday that we left University Hospitals after spending 5+ weeks in the Epilepsy Monitoring Unit (EMU), yet here we are again getting ready to pack up and make the five hour trip back down to Cleveland to check back in and do it all over again.

Many of you asked if I'd be keeping this blog again this time. It amazed me how many people followed this blog the last time we were there. In fact in the couple of months surrounding our time in the hospital more than 11,500 people read this blog. Now Tina and I don't have anywhere close to that many friends and family so I have no idea who those people were, but what I do know is that many people told me afterward how much God used this blog in their lives. As Tina and I reflect back on our time in Cleveland and recognize that from a medical perspective our stay wasn't very successful, we also recognize that some of the most significant successes in our lives can't be measured on a human scale. We were obedient to God's leading in our lives and although it didn't turn out how we would have liked, and the days, months, and years following have been difficult as a result of unsuccessful treatment, we realize that God used us in significant ways in the lives of many people. The hospital staff, friends, family, coworkers, our own kids, some of you who read this blog, and even in our own marriage, God's goodness was put on display. I believe that in a some small way God was made more famous through this experience even though from a human perspective it was not successful - or as my 13-year-old would say - it was an epic fail.

We have no idea how this trip will go. We don't know if it will result in a successful treatment of Tina's seizures or if it will end the same way it did last time. What we do know is that God holds all the cards, and that he loves us. How much more can I ask for, that the Creator of the universe, the one who through his power sustains the very existence of the universe, also knows my name - he knows me personally - and this blows my mind - he loves me. Really? The all-powerful God of the universe loves me? How could I ever improve on that? Yet, as I am often reminded, although he is all-powerful, and totally loving, at the same time he isn't safe. You see, God's ways are not my ways, and what I see as an "epic fail" God sees as complete success. What I see as too difficult, God sees as blessing me because he is building into my life the character that I need - his paths are beyond tracing out.

Oh, the depth of the riches of the wisdom and knowledge of God!
How unsearchable his judgements, and his paths beyond tracing out!
Who has known the mind of the Lord? Or who has been his counselor?
Who has ever given to God, that God should repay him?
For from him and through him and to him are all things.
To him be the glory forever! Amen.
- Romans 11:33-36

The last time I themed this blog after Romans chapter 11 by calling it "untraceable paths." I considered naming it something else this time around, but as I read through Romans 11:33-36 I recognized that we are very much in the same place as we were before. We don't understand all that God is up to in our lives, we do not see where this path is headed - it is untraceable - but we trust him with our very lives and it is our deep desire that through this he would receive the glory forever!


***I don't know if anyone is interested, but I have left all of the blog posts from the last time we were in Cleveland up and they can be accessed through the "archive" section on the left side of the blog.

14 comments:

truspartan said...

Thanks for keeping this up -- praying for you guys daily for strength and resolve. Praying for resolution and successful identification and treatment.

Love you guys!

Bristol said...

Praying for you guys! Tina: Paige's gymnastics schedule got switched so if Megan needs a ride home from Girl Scouts let me know.

Shan said...

Matt, I am so glad that you will be keeping us posted again. I like it so I know specifically how to pray for your and Tina. Safe travels.

John Good said...

Tina I can hear those hair clippers humming..
Oh shinny head is calling...
Love you guys
Uj

RadioDaveN7DAM said...

Thanks for sending the blog link Matt. We and our small group will be praying for you both.

Christa said...

We love you all! Hugs and kisses!

Christa said...

We love you all! Hugs and kisses!

Theresa L. said...

Matt and Tina- You are both very special people and yes, have impacted my life as well. I will be praying for you all. Tina- I want to send you a hug because you are loved. God is a God of victory-I know this personally. As he says in Zeph. 3:27 "The Lord your God is with you. He is Mighty to save. He will take great delight in you. He will calm you with His love. He will rejoice over you with singing." Love you both! Will be praying.

loisgroat said...

Thank you so much for blogging again. I will be praying for you all.

Mike said...

Matt and Tina,
We are sending warm prayers from FL. Praying all goes well and God will cover you with his comfort and love.

Becky U said...

Praying for you all!

Hope & Dan said...

Pray for you both and Noah, Megan and Lincoln as well as your folks! Thanks Matt for blogging and keeping us all up to date. With our love and prayers.

Aunt Max & Uncle Joe: said...

HI Matt and Tina,
We are glad you have the blog again. Prayers for both of you and the children. We are praying for your mom and dad too. Know they aren't used to the early mornings.
Ahem. :)
Love and Hugs,
Aunt Max and Uncle Joe

Glenda said...

Praying for you, my friends. I will be looking forward to your posts.