It's official, we'll be headed home tomorrow (Friday). There are two things that need to be done before we can head out. First, Tina's PIC line needs to be taken out, which is a bigger deal than just pulling and IV so the Dr. needs to do it. Second, someone from neurosurgery needs to change her dressing and make sure that all of her incisions look like they're healing correctly. As soon as those things are done we'll be hitting the road.
Today was the conference where the head neurologist discussed Tina with a whole team of people. He said that they talked for quite a while and no one came up with any new ideas. They are still very convinced that Tina's seizures are very focused and are all coming from the same place in her head, they just don't know where, and don't know how to find it. He said that they would be taking Tina's data and putting it through a new imaging process that might reveal something new, but he's not very hopeful. At this point we just need to manage Tina's seizures as best we can with medicine and wait to see if any new techniques are developed in the future that they can apply to Tina. We haven't ruled out the possibility of looking for a second opinion but we won't cross that road until after we get home.
Thanks again for all of your prayers and words or encouragement over the course of the last week and a half, we so appreciate it.
Oh, the depth of the riches of the wisdom and knowledge of God! How unsearchable his judgments, and his paths beyond tracing out! -Romans 11:33
6 comments:
It will be so good to have you home! Megan is making special plans for supper. Have a good morning and safe ride home. xo Dad and mom L.
Eat Megan's supper quickly and I'll be there at 5:30 to pick you up for scrapbooking! Seriously, growling, ok, we'll say lamenting, at the path this whole thing has taken, but glad you get to come home early, especially for little Meggy's sake. I love you just the way you are and so glad you've come safely through this round of surgeries. -Sarah C.
Hey!! Hope you guys are all doing well. Sorry to hear about Tina. I am going through the same thing with my son. He was recently diagnosed with Epilepsy and has been on multiple meds, none of which are helping him at all. His seizures are continuously getting worse, it's scary. It's so hard having a child with seizures and not being able to do anything for him to make him better. Hopefully one of the doctors will be able to help Tina. Keep in touch and tell all the kids I said hi.
~Mirandy~
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