It has been a long day for Tina. She was woken up multiple times throughout the night last night in the expectation that she would go down to the OR abut 8:00. They started another IV, drew blood, talked her through what she needed to do to wash-up with an antiseptic soap, etc. Then when it was determined that she wasn't going to go down to surgery until early-afternoon they let her sleep, only to come in all in a rush at 8:30 because transport was on their way up and no one wants to keep the surgeon waiting.
As you know from my previous post the surgery went well, but clearly Tina is much more wiped out than the first one and is in more pain and so is much more highly medicated. At one point, while they were still connecting the leads from her electrodes to the computer, she thought she might be having a seizure because of the feeling of adrenalin and fast heart rate. The EEG tech checked her out and confirmed she wasn't having a seizure, and the nurse checked her out and confirmed that her heart rate and BP were right were they needed to be... turns out she was just high. Gotta love all that clean living.
As of now she's still very tired and is mostly sleeping. Oh yeah, and she has a head ache. I have to tell you my wife's the man. The nurses and EEG techs remain in awe of her. She comes back from surgery missing a large chunk of her skull and a bunch of wires hanging out of her brain and she's cracking jokes as she's being rolled down the hall. Me, I'd be bawling like a little school girl (no offence to any school girls reading this). Seriously, God has given Tina an amazing out look on all that is going on.. and an amazing pain tolerance.
They gave her anti-seizure meds last night, this morning, and tonight and then will cut her off from here on out as we once again are hoping for seizure activity that will clearly indicate which part of her brain is responsible for her seizures. Please pray that Tina will heal quickly from her surgery and that she will show some good seizure data.
As I laid there in bed last night thinking about the fact that Tina was going back in today for surgery and that we had been in that same position exactly a week earlier, I regretted the fact that I was unable to sleep next to my wife and just be near her throughout the night. I also thought about all the what-ifs. What if something happens? What if all this is for nothing? What if we sit here for another two weeks with no seizures? What if hey determine that where her seizure focus is isn't operable? All valid questions. Understand that these aren't questions that I'm asking in despair or even out of fear, but none the less they are real possibilities and they sometimes do weigh upon my mind. I remember thinking how nice it would be to just wake up and it all was a dream.
This afternoon as I waited while Tina was in surgery, I was reading "True Spirituality" by Francis Schaeffer and something he said struck me. "Is it not true that our thoughts, our prayers for ourselves and those we love, and our conversations are almost entirely aimed at getting rid of the negative at any cost - rather than praying that the negatives might be faced in the proper attitude?"
Certainly this doesn't mean that we don't pray for healing, that we don't pray for good prognosis, that we don't pray that God would bring relief to the negatives in our lives. What it does mean is that when our aim is first and foremost relief we miss the point. I live in a world that seeks to avoid pain at all costs and expends every shred of energy on experiencing the greatest about of pleasure it possibly can. I've lived 35 years on this planet, not a ton I know, but it's long enough to know that it is impossible to avoid pain, and pleasure is continually fleeting. So what to do?
I suppose I can stoically resigning myself to the fact that the world just sucks and then trudge through until I die, but if there is no hope for this life we might as well get it over with now. Or I suppose I can try and make it through with happy thoughts and a good positive outlook, but again experience has taught me that there is no amount of "good" thinking that actually results in a tangibly positive outcome in my life. So what else is there?
Well lest you think I have it all figured out, let me assure you that I am still in the process of coming to grips with the what to do with the negative things in my life. What I have come to realize is that the attitude that offers hope is the attitude as Christ. Paul says in Philippians 2, "Your attitude should be the same as that of Christ Jesus: Who, being in very nature God, did not consider equality with God something to be grasped, but made himself nothing, taking the very nature of a servant, being made in human likeness. And being found in appearance as a man, humbled himself and became obedient to death— even death on a cross!"
I need to have the same attitude as Christ and that attitude was one that did not seek his own relief, but rather he became obedient and embraced the difficulties in his life, recognizing that they had a purpose. For Christ that purpose was the salvation of the world, my purpose is not quite as noble, but it is cast from the same mold and is no less fulfilling. When I am obedient to him and embrace the difficulties in life with the right attitude, I too fulfill my purpose - that of bringing the greatest glory to my Lord and King. I have found that when I can have this attitude I'm able to endure the negative things in life and, as strange as this may sound, there is joy in my life even if there is not relief from pain.
Like I said, this is still a process for me, and anyone who tells you that coming to grips with this is simple, is either deceived or a liar. It is so easy to demand relief from the negative things in my life, and it is so hard to be willing to embrace the negative things in my life as a way in which God can build within me the same attitude of Christ, but hopefully little by little I'm getting there.
Early Easter morning, four and a half years ago, life for our family changed forever. I awoke to the sound of an otherworldly noise and Tina’s body convulsing uncontrollably. That event began us onto a path where we would discover that Tina was suffering from late onset Epilepsy. That path would include long periods of Tina being home-bound and a non-stop roller-coaster of trying to figure out which medications would strike the best balance between controlling her seizures but also limit the debilitating side-effects of chronic fatigue and loss of focus – that effort has only been marginally successful.
On July 14th 2010, our path took another turn when Tina underwent a five week long surgical procedure where doctors at University Hospitals in Cleveland Ohio implanted multiple electrodes into her brain in the hope that this would allow them to locate the spot in her brain that is responsible for her seizures and then surgically remove that spot in an attempt to control her seizures without medication. Unfortunately after 3 surgical attempts to locating this seizure focus, the clock ran out and the risk of continuing this procedure became too great, so they removed all of the electrodes, and sent her home with very little to show for our 5 weeks in the hospital.
When we left Cleveland two summers ago we couldn't imagine that we would go back anytime soon. Those five weeks in the hospital were very disappointing for Tina and difficult for our kids. However, over the course of the last year and a half, Tina's seizures have become progressively more frequent, and medications have become progressively less effective at controlling her seizures. So, after consulting with Tina's neurologists, it is clear that we are in for yet another turn in the path of life.
We will once again be making the trip to University Hospitals in Cleveland, and on Wednesday January 11th, Tina will once again undergo the same procedure to implant electrodes in her brain to monitor seizure activity in the hope that they can determine the physical location of her seizures and surgically remove it.
This is not a path that we went looking for nor did we anticipate how sharply our lives would change literally over night when four and a half years ago these seizures began. There have been days when we have wondered as to why these things were happening and what God was up to in this. What we have learned is best summed up by the Apostle Paul in his letter to the church at Rome where he said that the paths that God lays out for us are "beyond tracing out." We may not understand this path or where it’s leading us, but what we do know is that we would rather follow God’s untraceable path than to follow any path we could lay out for ourselves. This blog is our attempt to bring others along with us as we walk along God’s untraceable path.
On July 14th 2010, our path took another turn when Tina underwent a five week long surgical procedure where doctors at University Hospitals in Cleveland Ohio implanted multiple electrodes into her brain in the hope that this would allow them to locate the spot in her brain that is responsible for her seizures and then surgically remove that spot in an attempt to control her seizures without medication. Unfortunately after 3 surgical attempts to locating this seizure focus, the clock ran out and the risk of continuing this procedure became too great, so they removed all of the electrodes, and sent her home with very little to show for our 5 weeks in the hospital.
When we left Cleveland two summers ago we couldn't imagine that we would go back anytime soon. Those five weeks in the hospital were very disappointing for Tina and difficult for our kids. However, over the course of the last year and a half, Tina's seizures have become progressively more frequent, and medications have become progressively less effective at controlling her seizures. So, after consulting with Tina's neurologists, it is clear that we are in for yet another turn in the path of life.
We will once again be making the trip to University Hospitals in Cleveland, and on Wednesday January 11th, Tina will once again undergo the same procedure to implant electrodes in her brain to monitor seizure activity in the hope that they can determine the physical location of her seizures and surgically remove it.
This is not a path that we went looking for nor did we anticipate how sharply our lives would change literally over night when four and a half years ago these seizures began. There have been days when we have wondered as to why these things were happening and what God was up to in this. What we have learned is best summed up by the Apostle Paul in his letter to the church at Rome where he said that the paths that God lays out for us are "beyond tracing out." We may not understand this path or where it’s leading us, but what we do know is that we would rather follow God’s untraceable path than to follow any path we could lay out for ourselves. This blog is our attempt to bring others along with us as we walk along God’s untraceable path.
6 comments:
How much we learn from your thoughts! Many things to ponder and give over to our Lord!. As far as Tina's pain threshold; this has always been true. Case in point: the time she almost decapitated her finger in a weight machine and then preceded to go on to the movie that she was attending with Stovens without saying a word; only to have to have surgery to repair the damage the following day! Her tonsil abscess which closed her throat and she kept telling the nurses that "she wasn't sick". I could go on forever. love and prayers for you both.
Wow, what a week! I so appreciate your blog and your honest and funny thoughts. Praying for healing and that the doctors can get the info they need sooner than later. Keeping you in our prayers, Kevin and Veronica Antel
Matt~You are such an INSPIRATION to me! I pray that God's loving arms of comfort and assurance will be around you at this time, as well as around Tina!
With love and prayers~
Pam
Hey Matt
Thanks so much for keeping us updated. You are in our thoughts and prayers everyday. Give Tina-bean a hug and kiss for us.
Love A Mary & Charlie
So much great content in your blog, Matt. Been reading in Matt 14 about Jesus walking on the water. What did he say to frightened disciples "Take heart, it is I, Do Not Fear". Somehow His presence is what we most need, not the thing we desire....one thing to get it in our heads....another to live it out one day at a time....in hard things....prayers are with you!
Thank you for that post :) Much love to you both xo Linds
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